Table 1 Essential data elements of patients and samples
From: Local data commons: the sleeping beauty in the community of data commons
Category | Data elements |
|---|---|
Patient | Â |
Patient demographics | Name, SSN, sex, race, birth date, address, etc |
Disease diagnosis | Date, site, histology, behavior, grade, stage, etc |
Disease treatment | Course, date, type (surgery, radiation, chemo, etc.), agents |
Long term disease outcomes | Date of last contact, vital status, recurrence status, etc |
Sample | Â |
Specimen ID | Unique specimen ID |
Specimen Site | Blood or body tissue that is taken for medical testing |
Specimen Type | Fresh frozen, FFPE, slide, etc |
Date of Collection | Specimen collection date |
Tumor specimen | Total tissue volume, tumor purity by stain, tumor nuclei percentage, etc |